Bhutila Karpoche MPP/Députée/གྲོས་ཚོགས་འཐུས་མི། Parkdale—High Park

Government of Ontario

Ontario Needs a Rare Disease Strategy

TO THE LEGISLATIVE ASSEMBLY OF ONTARIO:

WHEREAS Ontario currently lacks a rare disease strategy, which has left those who are living with rare diseases without access to the support they need;

WHEREAS in 2016, the Ministry of Health established a Rare Diseases Working Group committee to develop a provincial framework on this issue;

WHEREAS the Rare Diseases Working Group Report was submitted to the Government of Ontario in 2017 with important recommendations, which have never been implemented;

THEREFORE we, the undersigned, petition the Legislative Assembly of Ontario as follows:

Immediately pass the Rare Disease Strategy Act, and implement the recommendations set out in the 2017 Rare Diseases Working Group Report.

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